March was Cerebral Palsy (CP) Awareness Month and April was Child Abuse Awareness Month, and I have been wanting to write this post for a while now. This post will cover CP and abuse and mental health issues as May is Mental Health Awareness Month.
Cerebral palsy is a neurological disorder that affects the brain causing difficulty in movement. It can be mild, affect one side of the body, or severe. I have severe cerebral palsy and I can’t physically take care of myself at all. I didn’t breathe for 40 minutes after I was born and they almost gave up on me. I was in the NICU for a couple weeks and I wasn’t expected to live. But I did! I will be 40 in September!
But the lack of oxygen caused the brain damage that led to the CP. I can’t control my muscles and have spasms which are involuntary contractions of the muscles and involuntary movements. I am typical cognitively. I type with my nose and write books and these posts with my nose. My children’s book about my life with CP will hopefully be out at the end of the year. Getting the right illustrators has been hard but I finally found the perfect people to do it and they are doing a wonderful job with it!
Having a severe physical disability is hard but I refuse to let it ruin my life. I am a survivor and I hate pity! I crave acceptance and to be seen as a person! Sadly, many people are not able to see the real me. They see me as a child or subhuman instead of a competent person. I am so much more than my disability.
I prefer person-first language. I am a person with a disability, not a “disabled person.” I am a person with cerebral palsy! I refuse to be defined by my disability. Words like “handicapped,” “cripple,” “retard,” and “spaz” are very offensive to the disability community. We are people who deserve respect and rights and support. But again, despite making progress in this country, some people just refuse to accept and see us.
Children with disabilities are more likely to be abused and bullied. I was. Children that didn’t know me would make fun of me at school. I was also physically, mentally, emotionally, and verbally abused by my parents. As I have written in another blog post, I truly believe that both parents are/were narcissistic which is confusing because they did fight for me for the services that I needed and did care for and loved me, but there was also abuse at home. Some of the abuse that I experienced I recently found out through professional therapy that it was abuse and that I wasn’t protected like I should have been and have been put down even through adulthood. I am now protecting myself from those people and my husband does a wonderful job with helping me.
What is sad is that in a Facebook group my abuse was questioned by some of the parents and these parents claimed that adults with CP are harder on parents. There’s no evidence that this is the case and all the people I know with CP have wonderful relationships with their parents because they weren’t abused by them. Never ever question the abuse of someone!!
Due to the lack of being able to do what typical children and adults are able to do combined with the abuse and trauma I have suffered, I battle anxiety, CPTSD, PTSD, and depression every day. Sometimes I have it pretty together and other times it is a struggle. The pandemic has heightened everything and I am struggling to get out of it again. I will though. Therapy is helping me.
Having CP is just something I live with like my mental health issues. I try to use my pain to help people. If I can stop one child from being hit or otherwise abused, I will keep advocating and educating people who are willing to learn. My pain and abuse doesn’t define me either but it is something that I live with.
I wish there was more acceptance for people with disabilities and mental health issues. I also wish that people understood that how we treat children will affect their mental health. If one isn’t a white, rich man, it’s still hard to get along in this society and this must change. There should be no stigma for the abused, people with disabilities, or people with mental health issues.
Let’s raise our children to be more aware and accepting. I hope my children’s book that will hopefully be out by the end of the year will help with creating a more zombie accepting world.