Category: Disability

My Children’s Books and Teaching Children about Disabilities as well as Encouraging Children with Disabilities

Stephanie G. Cox, M.S.Ed

It’s been a while since I’ve written a blog post. This is due to the fact that I have been busy working with a wonderful illustrator that has finally completed the illustrations for my children’s book about my life with severe cerebral palsy. This was a very traumatic experience for me as “friends” wouldn’t finish the book’s illustrations in a timely manner. I was able to raise the money back with GoFundMe and the book is completed! George Franco is an amazing illustrator. I’m beyond grateful for his work and commitment to the project!

As I have written in previous posts, the book is based upon my life with severe cerebral palsy. We used actual photos of me both as a child and adult in order for the illustrations to show how I require very specific seating and care. It also shows how, with the help of my family and friends, I can overcome most obstacles to do what I want. It might look different but there’s usually a way around things.

I have yet to see any other picture books that accurately portray severe cerebral palsy. That’s why I wrote this book and was very specific about the illustrations showing how my wheelchair always has a lot of support to hold me in the proper sitting position as I can’t sit up on my own at all. I would fall right out of a standard wheelchair.

In the current environment of a group of people who are hateful toward anyone who doesn’t stand/measure up to their “agendas,” it is even more important to have a book that is all inclusive. It has every race, ethnicity, ability, and gender in it. I believe it is vital to fight for equality for human equality! Everyone is human and we are all equal!

I also want children like me to have a book that is inspiring to them. I want a child with any severe disability, especially those with cerebral palsy, to know that there’s hope. Even if the adults around them are telling them they will never achieve their goals and dreams, they can look at my book and just keep fighting for what they want to achieve!

Compassion is something that is in short supply in society today, and yet, there are many compassionate people out there who are advocating for people who are being oppressed and treated horribly by the new right-wing movement. It’s truly scary. The most abused children are often either disabled or in the LBGTQ+ communities. I want to stop this abuse from happening. I want today’s children to be taught compassion and kindness for all!

Unfortunately, Covid is still a problem for many in the disability community. We often have reduced lung capacity, asthma, and other health issues that are still making it more likely that we would get severe Covid and potentially die. Most of us are up-to-date on the Covid vaccines but some of us, such as myself, can’t swallow Paxlovid because the pills are too large and can’t be crushed. People are moving on from Covid and just don’t think about those of us are still going to great lengths to avoid getting it until there are better vaccines and treatments available for everyone to take and be okay. While my book is about my life pre-Covid, I still hope to use it to help people who are willing to truly listen and understand in order to be more aware of the vulnerable. I cling to hope that I will be able to live my life as I did prior to the pandemic someday soon.

Teaching children accurate information about disability is crucial in keeping society inclusive to all. Here are some examples of how to teach children about disability:

  • Instead of telling children not to stare, talk about how cool the wheelchair is or how incredible it is to walk with crutches. Point out how the person is also alike. For example, “It looks like her favorite color is green.”
  • When children ask “What’s wrong with him/her,” tell them that nothing is wrong with the person. The person just has a different body and/or brain and this is okay! We are all different and unique.
  • With Covid, please stand a certain distance from the person and ask him/her if you and your children may ask a few questions. I love answering questions from children! I also want adults to ask me questions instead of just assuming things about me that may or not be true.
  • Watch TV shows and movies about/featuring people with disabilities. Some examples of TV shows and movies are Speechless, Born This Way, Love on the Spectrum, As We See It, My Left Foot. Just search any streaming service and you’ll find all sorts of great shows and movies about and/or with people with disabilities. Some are more appropriate for younger audiences, of course, than others, but it’s important to let children learn about disability.
  • Read books about disabilities. There are tons of books for every age about different disabilities.

Love over hate is the goal we’re aiming for. Equality is also the aim. Nobody is better than anyone else; we all have human blood running through our veins!

I will keep you posted on when my new children’s book is available. Thank you so much to everyone who donated to my GoFundMe campaign last year!

Can You Be Pro-life And Still Not Approve Of The Overturning Of Roe v. Wade?

Stephanie G. Cox, M.S.Ed

I believe that the answer to this question is a whole-hearted yes! As I write this blog post, I am sickened by the Supreme Court overturning Roe v. Wade. Just a few years ago I would have celebrated it, but watching the world situation the last few years, and opening up to the other side of abortion has changed my beliefs about this. Plus, Covid has shown me that the very people who are supposed to be pro-life aren’t at all. They won’t do anything to protect themselves and others from this serious virus that is causing harm and death to millions of people around the world daily.

According to this article, somehow the Supreme Court used this case to overturn Roe v. Wade. “The court’s decision in Dobbs v. Jackson Women’s Health Organization upheld a law from Mississippi that bans abortion after 15 weeks of pregnancy, roughly two months earlier than what has been allowed under Supreme Court precedent dating back to Roe.

In siding with Mississippi, the court’s conservative majority said the Roe decision was egregiously wrong in recognizing a constitutional right to an abortion, an error the court perpetuated in the decades since.”

To be honest, I truly don’t understand how they went from an appropriate limit on abortion to completely overturning the whole law. I personally believe in limiting the abortion to 12 weeks gestation unless it’s a medical emergency.

I hate abortion! However, watching how the world is so inconsiderate of other people, and how a former president who is horribly narcissistic even tried to overthrow the election, I see now that the “pro-life movement” is truly just pro-birth. They don’t want to do anything to help women, men, and babies.

Here are some of my own definitions regarding abortion and pro-life. Again, these are based off my own observations and opinions.

Pro-birth

Pro-birth: Just getting the baby born without doing much to support families and teenagers during and after the pregnancy. Going through the states on this website, it seems like the states that are outright banning abortion only allow it for a medical reason. And some of them are trying to do away with the Plan B pill.

“What does Plan B exactly do?

Plan B One-Step is a type of morning-after pill that can be used after unprotected sex to prevent pregnancy. Plan B One-Step contains the hormone levonorgestrel — a progestin — which can prevent ovulation, block fertilization or keep a fertilized egg from implanting in the uterus.

https://www.mayoclinic.org/tests-procedures/morning-after-pill/about/pac-20394730

Some states are limiting access to emergency contraceptives such as Plan B because they equate it with the abortion pill, but this isn’t the abortion pill, and it’s outright dangerous for rape/incest victims, people who don’t have the ability to care for the baby for any reason, and people with disabilities who are seven times more likely to be raped and/or sexually assaulted! They are not capable of handling pregnancy and the emotional trauma of having the baby taken away is tremendous.

Thankfully, in the midst of getting this post edited, President Biden signed an executive order to protect emergency contraceptives, abortions that are to save the life of the person who is pregnant if the child can’t also be saved, and beef up the Obamacare mandates of providing contraceptives. See this article as well as this one for more info about these protections.

I also worry about forced sterilization for people with disabilities and other people who are “different” because some of these pro-birth people are also White Supremacists that might try to limit who should be allowed to have children.

Pro-life

Pro-life aims to protect the life from conception to natural death. It recognizes that there are times when abortion is necessary for the woman who has a medical issue, the baby is dying, rape, incest, and people who are unable to carry the baby. It’s being willing to choose as much life as possible without having to deny that the baby is a baby.

Pro-life: Being willing to help stop an abortion through providing free support, birth control, health care, family health care, family leave longer than 6 weeks, free lactation consultants, help for child care, high quality child care, more sick days, access to healthy food for the entire family, classes on child care, and mental health care.

Some of these people call themselves pro-choice. I don’t have a problem with that as long as they truly believe in giving people the information they need to make the appropriate decision for the women and family. Many of these people want limitations on abortion and don’t believe it should be done after the first trimester unless it’s a medical emergency and the doctors try to save both the woman and the baby.

Abortion is a hard word because sometimes the baby is so wanted but he/she is found to have a condition that is slowly killing him/her and hurting him/her. In these cases, if these babies are viable, they simply have the woman deliver the child and hold the baby as he/she naturally passes away. This should never be prohibited! Unfortunately, this type of humane treatment is also called “abortion.”

On the opposite side, to abort a baby just because he/she has a certain condition that is livable is totally wrong! We deserve to live.

Pro-abortion

Pro-abortion: Not always wanting limitations on abortion. Not always wanting to make sure that the people are informed about what they are about to do. Also, some of these people are fine with partial birth abortion. Partial birth abortion is sick and murder!! There’s absolutely no reason to have a partial birth abortion. No!

I’m pro-life. I want children to live in a world that protects them long after birth. I’m sorry that there are times abortion is necessary, but it is. I would love to see it become more humane and respectful if the baby is removed from the womb closer to the 12-week-mark of pregnancy.

I’m very concerned about a number of topics that I have already covered. I think that this is a horrible precedent to set. And the fact that these judges lied under oath in order to get a position on the Supreme Court is a travesty!! So does that mean judges are free to lie under oath without any consequences? What does this mean for the justice system? It is already messed up with racism and other corruption, so now it may become even more corrupt.

Along with the majority of Americans, I am worried about the rights of the LBGTQ community that is already under fire. Please see my previous blog post about this. I’m worried about the rights of Black people, various other minority groups, disability rights, and the falling of our nation because of people who are narcissistic, right-wing extremists that want to stop progress and go backwards.

Yes, this is a truly scary time for the country!

Talking to young children about this

Finally, I would like to share a few tips for talking to young children about this.

  • Explain to the children that a woman has the ability to grow and deliver a baby. It is a wonderful thing!
  • However, sometimes the woman can’t keep growing the baby and that is sad.
  • When a woman is unable to grow the baby, the baby is removed from her body by a doctor and it’s traumatic, but necessary for her well-being.
  • The baby goes to Heaven (or the version that is appropriate for whatever spiritual beliefs that the family has).
  • The government is trying to take this away which will really hurt women and their families.
  • We want to protect this and protect babies from suffering.

This is a very complicated subject and emotional. I wish people could come together and set appropriate limits on abortion and prevent unwanted pregnancy from happening. Reversing Roe v. Wade isn’t a win for anyone. More will die because of this and that is NOT pro-life!!!!

Child Abuse In The Disability And LBGTQ+ Community

Stephanie G. Cox, M.S.Ed1 Comment

With the current laws being enacted in Florida and Texas as well as other conservative states to stop the LBGTQ+ community from being able to live their lives, it got me thinking about how I used to believe some of the same things until I started really listening to these people. I have many friends in this community now and I am heartbroken over how they are treated.

Many LBGTQ+ children are kicked out of the house when they come out to their parents. Some are subjected to horrible “conversion therapy” to try to “convince” them that they are not gay or transgender. These children are very likely to be abused and murdered by their family or people in the community who don’t want to understand that they are people too.

“Lesbian, gay, bisexual, transgender and questioning (LGBTQ) young people are over-represented in foster care, where they are more likely to experience discrimination, abuse, neglect and the risk of harm. A 2019 study found 30.4 percent of youth in foster care identify as LGBTQ and 5 percent as transgender, compared to 11.2 percent and 1.17 percent of youth not in foster care.”

https://www.childrensrights.org/lgbtq-2/

In Texas, a law was recently passed making it “child abuse” for parents to give their transgendered children care that would allow them to have the body that their brain is telling them they are. As of now, a judge has partially blocked the law. I believe that the exact opposite is true. It is abusive NOT to allow these children to have the gender affirming medical care they require. They are at a high risk of suicide for not being allowed to have transitional gender affirming medical care and psychotherapy.

People like to shrug off the suicide issue of transgender children, but according to Forbes from 2021, “52% of all transgender and nonbinary young people in the U.S. seriously contemplated killing themselves in 2020. More than half thought it would be better to be dead, rather than trying to live with rejection, isolation, loneliness, bullying and being targeted by politicians and activists pushing anti-trans legislation.”

https://www.forbes.com/sites/dawnstaceyennis/2021/05/19/terrible-time-for-trans-youth-new-survey-spotlights-suicide-spike—and-hope/?sh=712121d2716e

These children have to deal with so much discrimination from conservative policymakers. They are banned from using the correct bathrooms with which they identify. What do we think happens when a trans girl is forced to use the boys’ bathroom and vice versa? They look like the gender with which they identify.

And banning them from playing on the team of the gender with which they identify because people think they have an advantage over the other team is wrong. We might as well ban anyone “different” from playing sports because I can guarantee that transgender children don’t have any advantage over their peers. Everyone is talented in different ways!

Finally, the so-called “Don’t Say Gay” law in Florida enacted by Governor DeSantis is horrible! As an early childhood professional, sex and gender identity isn’t a main topic in the curriculum unless we have a child with gay parents or a child who is struggling with this issue. These children deserve support and compassion. Teachers need to teach children to accept these differences. The LBGTQ+ community is in no way trying to get children to be something that they’re not. They are just trying to get acceptance and support to stop the horrible discrimination they face daily. I believe in having developmentally appropriate discussions and books that include the LBGTQ+ community in the classroom.

I am so grateful that President Biden is taking action to try to help protect everyone in the LBGTQ+ community by taking executive action to stop the use of conversion therapy and help keep the rights and lives of this group as safe as possible. The amount of bigotry from the religious, right wing is absolutely disgusting! And it’s only getting worse!

There’s another group of children and adults who live with a higher than average risk of being abused: The disabled.

“Child abuse and neglect is reported in 3% to 10% of the population with disabilities. The rate of child abuse and neglect is at least 3 times higher in children with disabilities than in the typically developing population.”

https://publications.aap.org/pediatrics/article/147/5/e2021050920/180813/Maltreatment-of-Children-With-Disabilities

Children with disabilities have higher needs and require more care. They often have unique behavioral issues that typical children don’t. For some children with disabilities, these behaviors may last well into adulthood because their brains aren’t able to mature like typical people. They are so reliant on others for care and help that they are prime candidates for all types of abuse.

As someone with a severe disability, I can attest to the abuse. I was physically, verbally, and emotionally abused by my dad because I couldn’t control my muscles. I was emotionally and verbally abused by other family members and people at school. Just because life with a child who is disabled can be very stressful and frustrating at times doesn’t excuse abuse.

Like LBGTQ+ children, there’s a stigma that comes along with being disabled. We live in an ableist world. For a long time, people with disabilities, starting in young childhood, were locked up in institutions and forgotten. These institutions were absolutely horrible and many children died from abuse and inadequate care. There even used to be laws that prohibited people with disabilities from being in society. Similarly with the LBGTQ+ community, the disabled have a higher risk of being murdered.

Here’s an excellent article about the history of ableism.

As the article above points out, many religious groups believe that disabilities are due to “sin,” thus, causing people to treat them badly and abuse them. Let me be clear: No disability is due to sin!

Another thing that the article on ableism points out is that the medical community often treats the disability as a “problem.” But people with disabilities have absolutely nothing “wrong” with them. They are just different and deserve quality medical care, and yet, they often don’t receive it. The cost of medical care is even higher than that of typical people and people with disabilities also usually require adaptive equipment and therapy to be able to live the best life they can!

Unfortunately the Americans with Disabilities Act hasn’t helped all that much because most public places only do the minimum requirements. Many employers don’t want to have the responsibility of helping people with disabilities work in their work places. And people with disabilities don’t get “free money.” If they are on SSI, they can only have $2,000 if they are single and $3,000 if married. We’re trying to get this changed.

Being told by parents, teachers, employers, and society in general that “You’re worthless, a burden, a problem, a liability, and your life doesn’t matter” leads to isolation, anxiety, depression, and suicide.

Covid has really bought out just how ableist the world is, especially the United States. Many people feel that their lives are more important than others who are still vulnerable to serious consequences of getting Covid. It’s all-too-often just laughed at while believing that it is perfectly fine for people who are high risk to remain locked up for the rest of their lives. This is going back to the days when children and adults were forced to remain locked up and out of society. This is abuse!

There is no excuse for abuse of any child or adult, especially if they are different. We are all equal and worthy no matter our race, gender, sexual orientation, ethnicity, and/or disability. We need to stop going backwards and start moving forward to become a kinder, more accepting world. No child should be hurt. It is also abuse and ableist to expect any child to be someone that he/she isn’t or to expect children to be able to do things that they are not yet able to do!

Open Butterfly Wings

Stephanie G. Cox, M.S.Ed

March is Cerebral Palsy (CP) Awareness Month and the butterfly is the symbol for it. It makes sense because we are butterflies but our wings are usually clipped by society. Sure, we have limitations. For me, I have a lot of limitations because of my CP but I don’t like to focus on them. I like to live life. However, I have seen just how much humanity can clip wings with their ableist views on a virus that is killing people, especially us with cerebral palsy, who are high risk due to the muscles in our mouths, throats, and core that negatively affect swallowing and breathing. Even though I have become a “shut-in,” I truly try not to think about what I can’t do. It’s a bit harder, but this is not something that I choose to feel sorry for myself.

I do, however, try to relate to people why we are the way we are in this current situation. I require care 24/7. My husband does it all with zero help even if he is really sick or really hurting. He has no choice. Here’s a post I wrote about cerebral palsy last year.

It isn’t just now that society has clipped my wings. I had to prove myself from Day One. They didn’t think I would live (and really, I shouldn’t have with not breathing for 40 minutes), and if I did, I wouldn’t amount to much. I was in the NICU for almost two weeks.

Growing up, I had to prove myself to teachers and my peers. I was always the first person with severe cerebral palsy to do anything. I was finally allowed to be in regular classes when I was in 3rd grade. Even into college and grad school, I had to prove that with the correct accommodations, I could successfully complete the early childhood education program.

Even though I have spent most of my 40 years in school to have a career helping children and families, I still have not been able to get that career going like my peers have and I do have some shame and anger about this. But I’m refusing to give up.

Also, most people have no idea that the adaptive equipment I need isn’t cheap. It’s extremely expensive and I remember my parents fighting with their insurance companies that I had a medical need for a toilet chair or a bath chair or a wheelchair. Now I’m forced to pay for these things out of pocket and I had to have a Go Fund Me for my wheelchair in 2014 after my 19-year-old chair was so worn that the plastic was hurting me with no more padding.

There’s so much of my life that people don’t see and I want to be seen as a competent person who has unique needs. I still have to prove that I am a competent person because some people automatically assume that I am intellectually disabled. I love how children freely ask me questions and want to understand what is going on. Young children don’t judge me. They are curious. Older children can become bullies and I want to prevent that. Then there are a lot of “little me’s” that need another book that they can read and look at the pictures.

For me, growing up, the only book that I could relate to was called, Howie Helps Himself. The only problem was that they had him in a standard wheelchair, and at the end of the book, Howie pushes the wheels of his wheelchair to make it move. It kind of made me feel bad because I never was able to push myself.

My book shows my wheelchairs with my supports. It shows how I am able to do some of the same things that everyone else can do like love and feel and be a friend. It also shows real life things that I deal with every day such as knocking stuff over, being fed, falling over and needing help to get back up, people treating me as a “child.”

I truly believe that this book will help teachers and families teach children about disabilities and differences as well as similarities. It will also give hope to children with cerebral palsy as well as their parents and families.

Unfortunately, people like me are prey for people who think they can manipulate and use me until they reveal their true colors to me and I, and they, walk away. Thus, I have been ripped off twice now trying to get the book illustrated. I am an honest, caring, trusting person and I paid for each illustration as I approved them. All of the illustrators were people we felt close to and truly trusted. Lesson learned.

For Cerebral Palsy Awareness Month, I am asking for more people to help open butterfly wings by participating in a CP Awareness Month Facebook event and to please share as well as donate to my Go Fund Me page to keep raising the money we’ve lost in order to pay my new illustrator. I don’t know the illustrator and the contract is extremely specific. I have learned to guard my heart and my wings because I’m a free spirit. The illustrator will be paid after everything is completed and approved.

I want to open more wings despite the limitations.

Child Advocates Without Children

Stephanie G. Cox, M.S.Ed

This has been a major challenge for me in my career.  It is also a very sensitive subject for me because I have always wanted a child. May this post show people that people don’t have to be parents to advocate for children and have a career in child and family services.

The post below is from my friend, Elaina; we both had abusive backgrounds as children. That makes us even more passionate about advocating for children.

What is to follow is spot-on for me too. Having been subjected to obvious abuse from my dad and covert abuse from my mother who is now out of my life, I have always wanted to help stop this cycle. I want children of my own, but with my severe cerebral palsy, it just never got to the point of being able to afford help. Believe me, I don’t know what parenting is like, but I know it’s tough to re-parent myself—something I work on constantly.

I have spent a lot of time studying child development (I have a Master’s Degree in Early Childhood Education) and have worked with many children, including many young children. And, being severely physically disabled, I have gained a lot of insight on being totally dependent on others for my every need. I know how it feels to be treated harshly and gently.


I’ve asked my mommy friends if advice from my perspective is helpful, and they tell me that my lens really helps them, both on their good days and on their days in the trenches. They also have shared that they appreciate the things I’ve taken the time to learn and share – kind of like how when going to doctors, we look at their book knowledge and experience, not whether or not they’ve had the ailment. I care deeply about children and I feel strongly about advocating for them. However, I don’t think I am better than anyone else.

Please take to heart Elaina’s reasons for being so passionate about advocating for children despite not having children of her own.

Cerebral Palsy and Abuse

Stephanie G. Cox, M.S.Ed1 Comment

March was Cerebral Palsy (CP) Awareness Month and April was Child Abuse Awareness Month, and I have been wanting to write this post for a while now. This post will cover CP and abuse and mental health issues as May is Mental Health Awareness Month.

Cerebral palsy is a neurological disorder that affects the brain causing difficulty in movement. It can be mild, affect one side of the body, or severe. I have severe cerebral palsy and I can’t physically take care of myself at all. I didn’t breathe for 40 minutes after I was born and they almost gave up on me. I was in the NICU for a couple weeks and I wasn’t expected to live. But I did! I will be 40 in September!

But the lack of oxygen caused the brain damage that led to the CP. I can’t control my muscles and have spasms which are involuntary contractions of the muscles and involuntary movements. I am typical cognitively. I type with my nose and write books and these posts with my nose. My children’s book about my life with CP will hopefully be out at the end of the year. Getting the right illustrators has been hard but I finally found the perfect people to do it and they are doing a wonderful job with it!

Having a severe physical disability is hard but I refuse to let it ruin my life. I am a survivor and I hate pity! I crave acceptance and to be seen as a person! Sadly, many people are not able to see the real me. They see me as a child or subhuman instead of a competent person. I am so much more than my disability.

I prefer person-first language. I am a person with a disability, not a “disabled person.” I am a person with cerebral palsy! I refuse to be defined by my disability. Words like “handicapped,” “cripple,” “retard,” and “spaz” are very offensive to the disability community. We are people who deserve respect and rights and support. But again, despite making progress in this country, some people just refuse to accept and see us.

Children with disabilities are more likely to be abused and bullied. I was. Children that didn’t know me would make fun of me at school. I was also physically, mentally, emotionally, and verbally abused by my parents. As I have written in another blog post, I truly believe that both parents are/were narcissistic which is confusing because they did fight for me for the services that I needed and did care for and loved me, but there was also abuse at home. Some of the abuse that I experienced I recently found out through professional therapy that it was abuse and that I wasn’t protected like I should have been and have been put down even through adulthood. I am now protecting myself from those people and my husband does a wonderful job with helping me.

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What is sad is that in a Facebook group my abuse was questioned by some of the parents and these parents claimed that adults with CP are harder on parents. There’s no evidence that this is the case and all the people I know with CP have wonderful relationships with their parents because they weren’t abused by them. Never ever question the abuse of someone!!

Due to the lack of being able to do what typical children and adults are able to do combined with the abuse and trauma I have suffered, I battle anxiety, CPTSD, PTSD, and depression every day. Sometimes I have it pretty together and other times it is a struggle. The pandemic has heightened everything and I am struggling to get out of it again. I will though. Therapy is helping me.

Having CP is just something I live with like my mental health issues. I try to use my pain to help people. If I can stop one child from being hit or otherwise abused, I will keep advocating and educating people who are willing to learn. My pain and abuse doesn’t define me either but it is something that I live with.

I wish there was more acceptance for people with disabilities and mental health issues. I also wish that people understood that how we treat children will affect their mental health. If one isn’t a white, rich man, it’s still hard to get along in this society and this must change. There should be no stigma for the abused, people with disabilities, or people with mental health issues.

Let’s raise our children to be more aware and accepting. I hope my children’s book that will hopefully be out by the end of the year will help with creating a more zombie accepting world.

Isolation And It’s Negative Effects

Stephanie G. Cox, M.S.Ed

With the ongoing pandemic going on, my husband and I have been in isolation for eleven months now, and in October,  the one place I could safely go in was taken away because of the rising numbers of COVID-19.  So except for rides and medical appointments, I have not been anywhere in four months.  There’s a little hope with the new president that takes the virus seriously and with the shots that may prevent COVID-19, but there’s a lot of uncertainty and people still don’t want to take proper precautions to limit the spread.

All this is leading to unprecedented anxiety, depression, and desperation for me and many others.   I am a trauma survivor with the serious side effects of anxiety, depression, PTSD, and CPTSD.  I am losing track of the days and I am feeling like time is going in a weird speed.  My trust issues and abandonment issues are becoming worse and I don’t want to push the very people who truly love me away.  It’s a scary, lonely place and I am continuing to work with a therapist to get through the trauma of the abuse that was heaped upon me. But even therapy is harder because I can’t go in person.

This has been leading me to think about isolating time-outs for children.  I know I covered it in this post I wrote a few years ago, but with this new understanding of isolation and what it is doing to my 39-year-old brain, I want to talk about it again.

Isolation can definitely cause negative effects on the child’s brain as well as adults.  Here’s research showing the effects of isolation on the brain.

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It can cause anxiety, depression, desperation, despair, anger, and hopelessness.  This article shows the research on the effects of social isolation.  We are social beings that need meaningful relationships.  As someone with a severe disability, even before the pandemic started, there have been many times in my life that I was in a room full of people but I still felt lonely because I wasn’t able to find a deep relationship with anyone there.  I communicate easier online due to my slurred speech, but I still require in-person interaction.

This all leads me to isolation and children.  While toddlers will be ok with this pandemic and the quarantine as long as they have supportive adults who are able to manage their stress, older children are definitely being effected by not having the same level of social opportunities that they used to have.   Sadly, suicide rates for children are increasing.  Some children live in abusive or dysfunctional homes and they have lost their outlet of school and other activities that give them a break from their home lives.

Due to the experience of being isolated from the world except for online, I have an even better understanding isolating time-outs. Using isolating time-out is damaging to the child’s brain. I am not talking about the quick break that we all need sometimes.  I am talking about forcing the child to sit quietly alone for a specific amount of time and then making it longer if he/she doesn’t sit quietly.  This is punishment and harmful.  It is essentially isolation.

While if a parent is still bent on using punishment, I would rather have the parent use time-out rather than spanking/hitting their children.   However,  isolating time-out doesn’t teach anything but that the child deserves to be alone until he/she can behave.  Children, especially young children, have no sense of time so they feel like it is forever.  I remember feeling that way when I was put in my room and I would scream with anger and fear.  I hated my parents.  It didn’t teach me anything.

My husband remembers his dad leaving him for a brief period of time and he felt anxious about when his dad would be back because even though he was 8-years-old and old enough to be left briefly, he still had no sense of time.  

As I mentioned in my previous post about time-outs, children are usually not sitting there thinking about what they did wrong.  Rather, they’re angry, confused, in fight or flight mode, and wondering how much longer they have to sit there.  Some may learn to berate themselves for messing up.  Some may learn to distract themselves during the time-out.

Time-in, however, allows for quiet time with a supportive adult even if he/she just sits nearby until the child calms down enough to talk through what happened.  The adult can use time-in to teach children emotional regulation, empathy, validation, and coping skills such as deep breaths or using words to help them express themselves in a healthy manner.

 I understand that we are all on edge right now but isolating children to punish them will only make the children feel even worse and may exacerbate negative behaviors.  We all need to give each other grace and empathy during this ongoing stressful time.

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Unconditional

Stephanie G. Cox, M.S.Ed

How many things are truly unconditional?  It’s almost Christmas and we tell children that Santa will bring them presents if they are good.  We put Elf on the shelf so that they know he is watching them for Santa.  I know that some families play games with this toy but many people don’t.

Love is supposed to be unconditional but it often demands things from others or it’s removed when the child misbehaves—no matter how old he/she is.  Christian doctrine teaches that God is love but one must say the “right prayer” to avoid going to “Hell.”  I feel like true unconditional love is rare. I have seen both in my life and now it’s even more apparent with the pandemic.  Love for our neighbors means doing everything we can to protect them from COVID-19 by wearing masks, social distancing, washing hands frequently, and staying home for Christmas with immediate family.

And children should have presents just because they are loved; not because they were good.  The real St. Nick gave to the poor and helped the oppressed because he was kind and loving.  He didn’t expect anything from them. Here’s a wonderful video on the history of Santa.

Have you ever just given something to someone without telling anyone or given something to a complete stranger who needs help?  These have been the most rewarding experiences for me.  This is loving people unconditionally.

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I believe that respect is earned but love is not.  Love, especially for children, should never ever be earned.  This doesn’t mean that we have to be involved with toxic people.  Love them by walking away from them.

I understand that some people have very high-needs children and it is really hard but they should love their children for who they are.  Speaking from my own experience of being a very high-needs child as well as having a parent ask in a Facebook group about what to do to prevent damage from not being able to meet every single need, I believe that it is more important to explain to the child that we are trying our best and validate the child.

However, coming from an abusive, narcissistic home and struggling to come to terms with my own mother being narcissistic and and that she will never be able to be a good mom to me, what hurts is parents not talking about it in a healthy way.  I have severe cerebral palsy and even my husband can’t meet every emotional need I have and sometimes he gets frustrated which is human but it triggers me. The difference is that he is truly trying and admits to his shortcomings.  I do the same.

But with narcissistic parents, they don’t care and won’t admit that they are falling short.  In these cases and other abusive situations, the love is not unconditional.  I think as long as one has a good connection with his/her child and teaches healthy coping skills, the child may need help later on in life, but he/she shouldn’t have the same amount of pain and damage that us who were abused by our narcissistic parents have.

Accepting that one’s child is different than the parent is unconditional love.  When this happens and children have very different personalities than the parents, the best thing that parents can do is accept it and support the children.  Get involved with at least one activity that the child enjoys.  And share each other’s interests with each other knowing that it’s ok to be so different.  Yes, it is hard at times but the key is to validate and accept.

This Christmas, with so many people sick and dying from COVID-19, let’s remember the little Baby that came to Earth to try and teach us what unconditional love is.  Or if you don’t celebrate Christmas, please think about how you can make this world better by loving people instead of being selfish.

Have a peaceful Holiday season.  We remember all who we lost this year.  May 2021 eventually be a better year!

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Covid-19, Black Lives Matter, Mental Health, And Helping Children.

Stephanie G. Cox, M.S.Ed1 Comment

The past few months have been really difficult for me with the Covid-19 pandemic and being super high risk. It has made me struggle with dealing with my own trauma, trying to do what is right and safe regarding the trauma of having a mother who can’t give me what I need, but still wanting her and my other biological family to remain safe. I have felt isolated and anxious and depressed. Being so high risk due to my asthma and severe Cerebral Palsy (CP) has made me angry when I finally realized how serious this virus is for many and seeing how people just don’t want to do what we need to do to be safe!

Life with CP is limiting and even though we find a way to do stuff that I want to do, it’s not easy like typical people who are able to just jump in the car and go. My state is in Phase 3 of reopening and I got my first non-essential, non-medical outing this week to my tattoo artists and chosen family to finish my Samoset kitty tattoo that was started before the outbreak and lockdown started. I was only able to do it because they locked the door and my husband and I were the only ones in there besides the artists. Masks were worn and sanitizer was used even more.

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Throughout this pandemic, I have been aware of all the different aspects of it. My mental health as well as others have suffered due to isolation, people are losing everything, suicide is up. There’s so much to this pandemic and it is so sad that some elected officials are not doing everything they can to prevent this from being so out of control.

I know children and parents are struggling. I think the best thing to do for children is to create routines that are flexible and, if they are old enough, allow them to have a say in the routines. And as I’m sure you have already heard, answer questions honestly but briefly depending on their age and development.

This is scary for the children too. They have lost a lot and they may not be able to understand why. So I have heard a lot of regression in children’s behaviors have been happening from parents. This is so hard because I know parents are stressed out too. I recommend reassuring the children and finding an activity such as meditation or reading or yoga to help calm stress and fear. This is not an easy time for anyone.

Now we have a horrible murder of a black man, George Floyd, that has set off protests and riots in the midst of a pandemic. It is so scary and sad. Racism has got to stop!

I used to say “all lives matter” and even wrote a blog post in which I used “All Lives Matter” for the title of the post that covered every race, ethnicity, religion, gender, sexual orientation, and, of course, children mattering.

Having a severe physical disability made me question, “what about other minorities?” I was a Republican slowly making my way towards Libertarianism at the time. I am now a Libertarian and while I still love Jesus, I’m no longer into mainstream Christianity anymore due to the legalism, bad church doctrine, and abuse, and hate.

I now understand the Black Lives Matter movement and right now this group of people desperately need our support, validation, and LOVE! Saying “all lives matter” doesn’t do this for black people who are hurting badly. Jesus immediately went to the people in desperate need no matter who they are. Jews didn’t hang around Samaritan people but Jesus did.

I know many Christians and conservatives won’t hear me because I was the same way about this topic and I had to figure it out for myself. But I am embarrassed by my ignorance even though I was trying to be fair and supportive and was trying to validate everyone but I was wrong. I support Black Lives Matter and peaceful protests except for the Coronavirus concern. I hope my story helps someone moving away from ignorance to validation and love over being “right.”

Our children are watching everything and need to be taught kindness and acceptance for all. There has also got to be a major change because most black families experience so much pain and violence in their lifetimes and parents of black children are even more likely to spank/hit and harshly punished because they fear that if they don’t teach strict obedience to authority that it could be their child that is murdered by a bad cop. But this spanking and hardship make the children more likely to act out and get into crime.

And while police lives also matter, it’s important to keep in mind that there are many good cops of all races and they don’t deserve to suffer. On the other hand, white cops need to remember that at the end of the shift, they are like everyone else. But black people still have to deal with the racism and can’t hide from it.

Please be safe and get tested for Covid-19 if you participate in the peaceful protests and quarantine yourself because we can’t make change can’t happen if we’re sick and in the hospital or dead.

May we strive for kindness and love and create this in our children. May peace, love, and light reign in our world!

Do You Resent Your Child?

Stephanie G. Cox, M.S.Ed

I hear that being a parent is very hard work and I agree even though I am not a parent.  Most of my friends have children.  My husband has a son. Therefore, I see and hear about all the sacrifices that they have gladly made.  I get to witness some of these sacrifices my friends choose to make for their children.  It’s not always fun but they do it out of love.

Teachers also make sacrifices for the children in their classes.  I did.  I had to do my best to be at my best for the children I worked with.  Did I get exasperated when a toddler was high spirited or had behavioral problems and needed extra attention?  Yes!  Did I feel stressed out when I worked with infants and they all started crying at the same time with only my aide and me in the room?  Yes!

However, I never held it against them because I chose to be a teacher and I understood that they were just being themselves.  I understand how the child brain works so to hold that against them would have deeply hurt my connections with them.  Children are also very perceptive.  They can feel our stress and negative vibes.

I am severely physically disabled and I understand that I am a lot of work.  It must be even more difficult to parent a child with a disability because he/she requires even more care and can’t always do activities that typical children can, especially children with sensory issues such as aversion to loud noises.  Should it be held against a child if he/she gets overwhelmed by crowds or loud noises?  No, of course not, because it’s out of their control!

According to dictionary.com, the definition of resentment is:

“noun

the feeling of displeasure or indignation at some act, remark, person,etc., regarded as causing injury or insult.”

So a person who feels resentment towards his/her children believes that the children have caused “injury or insult” to him/her and holds it against them.  These people are not able to let it go.  Let’s face it, children will hurt us sometimes but they usually don’t truly mean it.  And children are born with the ability to love unconditionally.

They didn’t ask to be conceived and born.  They didn’t ask to have an immature brain that doesn’t allow them to have total impulse control over their behaviors.  And children with disabilities didn’t ask for it either!

I know parents don’t ask for their children to be disabled or high spirited.  However, by choosing to become a parent, parents should be ready for anything even if this means asking for help when they are overwhelmed and don’t know what to do or are exhausted.  I understand that getting help and support isn’t always easy and our country has much work to do in supporting families of every type.  Organizations also need to step up the resources and support for families.  But help is out there.

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Your screaming baby isn’t screaming just to drive you to tears.  He/She needs you and may not be able to sleep.  It’s not the baby’s fault.  Your preschooler isn’t hitting you and having meltdowns just to embarrass you or make you crazy.  He/She just don’t have the ability to deal with big feelings without your help.  The child needs you to gently but firmly guide him/her through the process.  It’s not the child’s fault.  Your teenager isn’t saying mean things to you because he/she truly means it.  Teens still require help dealing with strong emotions and it’s not their fault. Children need discipline and care.

Your child with disabilities isn’t trying to hold you back because he/she requires your constant care.  The child needs you!  It’s not his/her fault!

Children learn a lot from the adults around them.  They must learn about empathy, grace, and unconditional love in order to give it back.  It’s true that parents will get angry, frustrated, and exasperated with their children.  They will need breaks and self care.  But parents have chosen to be the child’s parents, therefore, to hold everything against the child is not appropriate.  If a parent is feeling resentful of the children, then he/she must seek help from professionals.  If not, then the relationship with the children will be tainted and may even become abusive.

Parenting is the hardest job in the world.  Believe it or not, so is being a child trying to learn and navigate through this new world.  Respect the children and the children will respect their parents unless they have a mental illness that needs addressing. Respect begets respect.  Resentment begets broken relationships.

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