Happy World CP Day! I’m discovering that aging with CP is hard. A lot more pain than I expected. However, I think back on my birth story and how I didn’t breathe for 40 minutes. The doctors almost let me go but my dad wouldn’t let them give up. Don’t go thinking my dad was a hero and I don’t know why parents would treat a child like me the way my parents treated me at times, but 42 years later, I’m still alive, married, and have my Master’s degree. I’m an author. I’m so much more than what people give/gave me credit for.

Cerebral Palsy is the most common lifelong disability in the world, and yet, we still don’t have federal funding for research on it. Many of my doctors have to be told more about it from me. And there’s limited resources available once one becomes an adult.

In the documentary, “Crip Camp,” it was revealed that back when Polio was still disabling children, “the Polios” were above “the CPs” because people who had Polio looked “more normal than the CPs.” It is crazy how much we still have to advocate and fight for ourselves. I truly feel like we are going backwards right now with the disability community because 6 out of 10 people with disabilities have died of Covid. It’s so scary to think people are okay with this and even want to not have to look at or deal with people like me because we’re so different and we need a lot more help to live.

I have an announcement regarding my new children’s book, My Name Is Steph. SEE ME! Please watch the following video that I made.

I hope I can get back out there and get this children’s book out to fight eugenics and other ableist things that even without Covid we still have to deal with daily.