Celebrating Black History Month

It’s imperative to teach our children the truth about Black history. It wasn’t easy for Black people, and it’s still not easy for them. Unfortunately, it’s only going to get harder for them again after so much progress. More progress is badly needed, but yet, we are going backwards instead of forward. Everyone is equal and deserve to be treated equally.

Some ways to teach children about Black history is to read books about prominent Black people who made a difference in the fight for equality. Read true accounts from slaves.

Watch movies and documentaries on the different aspects of Black History.

Talk to Black people and really listen to them.

Volunteer with Black people as well as other minorities.

Fight racism and discrimination against Black people.

Please don’t let the current regime teach children the exact opposite of what is true.

Source: https://www.facebook.com/@gay.equality.5/

Goodbye My Sweet Baby Girl. Welcome Back Grief and Pain.

Note: My husband usually edits all my blog posts to catch any errors or mistakes in my post. Today, we’re heartbroken and I don’t want to make him have to edit this post.

We’re absolutely heartbroken to announce that our sweet little girl, calico kitty, Patches has joined her “brother” in Heaven at around 5:30pm on March 28th. She was having severe dental issues and was going to have surgery to remove the resorption of her teeth, but she would start to get better with the pain medication and then go back downhill. It happened so quickly. She was fine for a 17.5 year old kitty but something happened one night and she was afraid to eat and drink. Over the past month and a half we have been in and out of the vet. Thankfully, I finally found a mask that will stay on my face as we’re still extremely high risk for Covid. I’m so thankful that I was able to go in the emergency vet with her and be at her appointments, especially her final one.

On the morning of March 28th, she was trembling and her gait was way off. Her last meal was the night before and she was acting like it had hurt her even though it was wet food and she was on pain medication. She was not able to eat or drink. She gave each of us that look like, “It’s ok Mommy, I will be ok.” The same look her “brother” gave me almost 7 years ago when we helped him cross the rainbow bridge.

The vet in the emergency department was that was there was their usual vet and he looked at her and he said that if he thought that there was any chance she would get better, he would tell us, but the way she was going, he didn’t think that the dental work would help her now. Something else was going on because he had been using Zorbium for other animals for chronic pain and he said she would be getting better and not worse.

Sweet girl knew it was time even though she was a fighter till the end. We loved on her and she was on my lap when she crossed over the rainbow bridge into Heaven. I kept asking the vet over and over that this was the best thing to do for her. He kept reassuring me that we were doing the kindest thing for her at this point. As she was asleep but still alive, I told her to go get YP. They were inseparable until he crossed the rainbow bridge and she grieved for him. I held her even after she had passed and petted her. As heartbreak as it is, I have held all my fur babies during and after they crossed because there’s no more pain finally.

The staff had a hard time because they had been in our lives for 16 years and cared for YP, Patches, and now Samoset. But Dr. Verbek was so strong and caring and reassured me that if he thought that there was anything he could do, he would be calling every specialist he knew to help her.

As a different kind of Christ follower than the mainstream Christians, my faith has totally changed. I believe in things that will make most Christians call me more heretical than they did before. But finding the truth about Jesus and Mary Magdalene is giving me so much peace and I know that animals are in Heaven. I am an empath who has had many spiritual experiences that can never be explained.

Patches Cox’s Obituary 

June 21, 2006-March 28, 2024

Sweet Patches, we miss you so much! You gave us so much joy and love. From climbing up the wall hanging to being a loud mouth. You literally would talk to us and answer questions like you really were answering. “Yeah now. Wow. Meow Mix. Hm-hm…”. So many different sounds that you could make. It was uncanny how you could answer questions and really try to talk. You had quite a vocabulary. You were able to carry on a conversation with us and loved telling us all about it. You could be quite loud. We would have to tell you to “use your inside voice.” You would make little noises too when you were laying down and you wanted to acknowledge us. You had a lot to say!

You also loved sleeping in blankets and if you were in a blanket and Daddy would come up to it and lean over, you would make little chirping noises to acknowledge him. You would also chatter to him.

I loved the way you would pick up your head sometimes when we were talking to you. You would be sitting there and you would just move your head up to acknowledge us and say, “I love you.”

I remember when we first were thinking about adopting another cat/cats, I didn’t want another girl right away because we had just lost your “sister,” which was my first cat and I loved her so much. I didn’t want to compare another girl kitty with Sara. But you gave me no choice.

Walking in the cat room at the shelter, I didn’t even see you at first because I was looking at the large cage with a lot of cats. You were in a cage by yourself to my right. As we met a cute cat that was afraid of my wheelchair and movements, I felt a tap on my left shoulder. It was you playing with my string of the zip up I was wearing. I immediately felt intrigued by you and how you weren’t even afraid of me. In fact, you turned over on your back and gave me a familiar look that Sara used to give me all the time.

We thought you were adopted already since you were in a separate cage but we quickly found out otherwise. Getting you out of the cage, you snuggled with us and purred. You also got away from us and ran under a cage but we were able to get you back out. When Daddy put you back in your cage and was washing his hands, you meowed as if to say, “Don’t leave me.”

I knew what we had to do. Daddy kept asking me if I was sure about it and I said that I couldn’t just leave you there without adopting you. Your “brother” was sick and in isolation for two more days. What if someone else adopted you before we came back to meet him and someone else adopted you? I was convinced that you had chosen us to be your parents.

You were brave coming home and snuggled with me and then you would hide behind the speaker before coming back out to explore and get loving. Once you were adjusted to the new house and your “brother,” there was literally no stopping you. You would chase YP up the cat tree, biting at his hind legs. You guys would tear around the house.

You loved running from the utility room to the hallway. You sounded like a galloping horse. Sometimes YP would chase after you. You loved peeing with Daddy in the utility room.

You had the most beautiful gait. Watching you walk from behind, you looked like a little horse. You also galloped like a little horse.

You would scratch the carpet in the hallway so I found you a little scratching rug to put over the spot that you liked to scratch at. Daddy taught you how to use the scratching rug and you immediately started scratching it. You kept scratching it until the end.

When you would scratch it or something else, you loved having me say, “Scratch, scratch, scratch.” Like your “brother,” you loved to play in boxes and bags. You were a very oral kitty who loved to bite on cardboard boxes and paper and plastic bags which we had to take away the plastic bags so you wouldn’t eat them.

After we went grocery shopping, you loved to “help” by going into the utility room and jumping on the washer and dryer to paw at the bag and get in them as Daddy loved on you and put stuff away. Then he would ball up the bags and shake them, thus, making you tear out of there and into the hallway to scratch your rug.

You loved trying to get in closets and cabinets. Daddy found you in a kitchen cabinet with your “brother.” Another time you were in the bathroom when Daddy was giving me a shower and we didn’t see you get in the bathroom closet until we heard meowing and weird sounds while I was in the shower and you were stuck in the closet.

You had your routines of asking for treats on a table and then you would make sure nobody was coming to steal them. Daddy called them “Secrets for cats” especially if your brother wasn’t awake. You loved your “Friskies” right up till the end when it was too painful for you to eat them. And you loved string treats and would do excited circles. You were the only one who could play with the kitty treat toy. Your “brothers” never got the hang of batting it around to get the treats out.

You loved getting up on Daddy’s chair and getting loving. You would play bite him and then give kisses. You loved having your neck rubbed after biting and kissing Daddy’s finger. You would look out the window. Then you would “assume the position” which meant Daddy would help you lay on his chest with your paws up by his neck. He would pet you. But you were a fire cat and didn’t stay long.

You also knew how to “be sweet.” Daddy would ask you “Can you be sweet?” He would put his face by you and you would usually kiss him on the nose. When you did this, Daddy would exclaim, “That was sweet!” Then he would pet you and let you bite and kiss his finger. You would kiss us all the time. Your little tongue was so rough as sandpaper! You kissed my nose and forehead about a week before you went over the rainbow bridge and I will cherish that memory forever!

After dinner you would get up and walk across the top of the couch to us. Daddy would have to Patches proof everything. You loved being petted and playing with him and I would have you smell my drink. The fur on your hind legs reminded us of “Ricky Ricardo pants” so when you would come down the side of the couch onto the arm of the couch, you would stretch your back legs and we would say, “you’re wearing your Ricky Ricardo pants.”

Another game you loved to play was “side to side.” You would get under the dining room chair and Daddy would reach down with both hands and touch you as you moved from side to side of the chair. You would play bite and give kisses. You also loved the smell of Daddy’s feet and slippers. You would kiss his bare ankles and feet. You would put your face in his slippers as well as lay on his socks.

You loved sleeping with me on the couch and in bed. YP would bug you sometimes but you were always with me. He would eventually lay down too. You loved to snuggle with me and even laid on my head and kiss my head. You would also sneeze on me.

You also loved the smell of clean hair. You would rub and snuggle with us. I love feeling the warmth and snuggles against my head and neck. How I now long for you to snuggle with me and walk on me.

You loved to wake me up some mornings by getting up on my pillow to mess with the blinds. I had to tell you no. You would also jump up between the beds with your brother and scare me to death.

You loved water. You would actually get in the sink and put your head under the water and just let it pour down your head. You both would get high up in the bathroom window to look out. If it was night, you would peak through the curtains to look at us.

You played fetch. One time we played with you guys so hard that you wouldn’t stop and finally started panting. You loved playing with light and you loved playing with toys that you would eventually destroy. In your later years you would be extremely vocal when playing. You were such a loud mouth. 

Playing in boxes with Daddy rubbing his finger on the box to make sounds and you were get at the side and paw until Daddy’s hand was in your reach to playfully bat it and bite. We’d pretend to be packing you up and shipping you away. You loved every second.

You also loved to go in Daddy’s radio room and look around and get “scolded” like YP. You would meow and yowl when you wanted to go in there or somewhere else. Even when Daddy was getting my blanket ready for you to lay on me, you would meow yowl. Sometimes you would even yawn and meow.

Another thing that you would do is make sure Daddy followed you to get something to eat. You would excitedly trot back to your room and keep looking back to make sure that Daddy was coming.

You were inseparable from YP and you guys were often snuggled up together sleeping and grooming each other. YP would bug you in your blanket and we would have to scold him. 

You loved watching the fall leaves and would scratch at the sliding glass door to try to “get them.”

I still feel bad for bringing in your second “brother” Samoset after YP went Home. After a year of pain, I just wanted a new life in the house. Despite trying to make sure that it would work out, Samoset has special needs and doesn’t understand cat behavior and language. This meant that you both ended up having separate rooms with equal time to be out in the house. I really think that if he had been a normal cat, you would have been able to co-exist because you tried and you would play with him under the bathroom door. I hope you weren’t too upset about having your final 6 years with having to spend time in the utility room. Thankfully, you seemed happy and well adjusted because you rarely complained about it and we had the routines set. Daddy came back there regularly and loved you and fed you what you wanted. You knew what bowl was for what food. You were a very social eater. You loved to have Daddy talk to you and say, “Snacks are good for cats. It’s good for cats to have some snackssssss.”

I miss you being in the window when we’d come home from places or even just sitting outside. You would look out and meow at us. You were one sweet little kitty.

At Christmas, when you were young, you would climb up the tree with YP! You would also sleep under the tree. Your favorite Christmas ornament was the old fashioned radio that plays different stations. You would meow and be right there when Daddy played it every night during the Christmas season.

I don’t know how to do this. We miss you already. Right now, the tears won’t stop coming. I have had to work on this obituary over the past month and the grief is still very bad. I had to get another toenail removed and I miss you being a nursing cat. You always knew when we weren’t well and would be even more involved in trying to help make us feel better. The mornings are so empty now that you don’t meet Daddy at the bedroom door and then come in to sleep with me.

Fly high and free with your brother and sister in Heaven! Please know that I’m so sorry that we couldn’t make you better. I’m so sorry for your horrible suffering. I don’t know if I will ever find peace about the way it all went down. I feel like I should have fought for you more to get the care you needed and deserved but I did the best I could as did Daddy. It was not supposed to happen this way and I wish that I had been wrong in feeling like you were going to die. I’m so sorry.

While I finally talked to the vet tech about how everything went with you, it seems likely that you had a brain tumor that grew extremely fast. Despite the fact that you were in so much horrible pain and went downhill so quickly, she assured me that you didn’t suffer too long. It gives me peace knowing that you probably wouldn’t have been able to recover no matter if you had gotten the x-rays. We would have had to let you go. But I am still haunted by your pain and passing so fast. I thought you had 1-2 more years with us because you were doing so well for your age and kidney disease.

We love you so muchPatches. I know you’re still spiritually here and in a different dimension. You will never be forgotten by us. We love you, Sweet Girl!

Love, Mommy, Daddy, and Samoset

Compassion is deeply lacking in this world today. So much hatred and anger. So much selfishness. As I move through this grief, again, people don’t understand that Patches wasn’t just a pet. She was a family member!

I’m terrified of how this world is going. Of how children are being taught to be hateful and selfish instead of kind and compassionate. I’m grateful to have found people who understand about grief and about Covid. Children deserve to be taught how to grieve and how to be empathetic to others no matter what.

In Patches’ honor, perhaps the people who are reading this could commit to being more compassionate and teaching their children to be the same.

All her nicknames. Just as many as YP!
Patches’ memorial tattoo.

World CP Day

Happy World CP Day! I’m discovering that aging with CP is hard. A lot more pain than I expected. However, I think back on my birth story and how I didn’t breathe for 40 minutes. The doctors almost let me go but my dad wouldn’t let them give up. Don’t go thinking my dad was a hero and I don’t know why parents would treat a child like me the way my parents treated me at times, but 42 years later, I’m still alive, married, and have my Master’s degree. I’m an author. I’m so much more than what people give/gave me credit for.

Cerebral Palsy is the most common lifelong disability in the world, and yet, we still don’t have federal funding for research on it. Many of my doctors have to be told more about it from me. And there’s limited resources available once one becomes an adult.

In the documentary, “Crip Camp,” it was revealed that back when Polio was still disabling children, “the Polios” were above “the CPs” because people who had Polio looked “more normal than the CPs.” It is crazy how much we still have to advocate and fight for ourselves. I truly feel like we are going backwards right now with the disability community because 6 out of 10 people with disabilities have died of Covid. It’s so scary to think people are okay with this and even want to not have to look at or deal with people like me because we’re so different and we need a lot more help to live.

I have an announcement regarding my new children’s book, My Name Is Steph. SEE ME! Please watch the following video that I made.

I hope I can get back out there and get this children’s book out to fight eugenics and other ableist things that even without Covid we still have to deal with daily.

July is Disability Pride Month

How many of you are aware that July is Disability Pride Month? I only found out a couple of years ago. We hear all about the different minority groups months and diseases, yet, we don’t hear about the disabled unless we know someone who’s disabled or loves someone with a disability. Disabilities affect more people than we realize, and yet, we are still ignored for the most part.

I don’t think I have ever felt ashamed of my cerebral palsy. Yes, I have wished that I didn’t have it at times, but I don’t focus on it. Unfortunately, I have felt shame vibes at times from my family, not from my grandpa though. I do get self-conscious at times despite giving the air of confidence.

In fact, I will be honest about my intense anxiety about my book coming out because it has become a totally different world from when I first wrote it. I’m wanting to get out there with my book but I have to still worry about Covid in a society that is so quick to move on and accept that the vulnerable people may still be hospitalized or die from it. I’m afraid of all the eugenics going on in the world right now, especially the right wing cult…But the fact that even the people who used to take precautions against Covid have stopped is unknowingly spreading the eugenics. Why? Because people who are afraid of what the virus may do to our already unique bodies are even more left behind by society. Yet, I listen to the Calm app and I focus on what I have to do to protect myself from the hate as well as find people who are willing to work with me for in-person events. If people are not willing to mask and work with me, then they don’t deserve to meet me.

I believe that I have to keep educating people about disability. We need to put disability in the foreground because all the rights that are being seriously threatened by the right wing are just a preclude for more disability rights and help being taken away too. I challenge you to look into disability history. I challenge you to see how much adaptive equipment for the disabled costs. It’s not easy to get the help we need.

My cerebral palsy is a part of me. I’m proud of myself for fighting through all the battles I have fought and will continue to fight until I die. I’m disabled and I am proud to be who I am and see things that others are too busy to stop and see.

My Children’s Books and Teaching Children about Disabilities as well as Encouraging Children with Disabilities

It’s been a while since I’ve written a blog post. This is due to the fact that I have been busy working with a wonderful illustrator that has finally completed the illustrations for my children’s book about my life with severe cerebral palsy. This was a very traumatic experience for me as “friends” wouldn’t finish the book’s illustrations in a timely manner. I was able to raise the money back with GoFundMe and the book is completed! George Franco is an amazing illustrator. I’m beyond grateful for his work and commitment to the project!

As I have written in previous posts, the book is based upon my life with severe cerebral palsy. We used actual photos of me both as a child and adult in order for the illustrations to show how I require very specific seating and care. It also shows how, with the help of my family and friends, I can overcome most obstacles to do what I want. It might look different but there’s usually a way around things.

I have yet to see any other picture books that accurately portray severe cerebral palsy. That’s why I wrote this book and was very specific about the illustrations showing how my wheelchair always has a lot of support to hold me in the proper sitting position as I can’t sit up on my own at all. I would fall right out of a standard wheelchair.

In the current environment of a group of people who are hateful toward anyone who doesn’t stand/measure up to their “agendas,” it is even more important to have a book that is all inclusive. It has every race, ethnicity, ability, and gender in it. I believe it is vital to fight for equality for human equality! Everyone is human and we are all equal!

I also want children like me to have a book that is inspiring to them. I want a child with any severe disability, especially those with cerebral palsy, to know that there’s hope. Even if the adults around them are telling them they will never achieve their goals and dreams, they can look at my book and just keep fighting for what they want to achieve!

Compassion is something that is in short supply in society today, and yet, there are many compassionate people out there who are advocating for people who are being oppressed and treated horribly by the new right-wing movement. It’s truly scary. The most abused children are often either disabled or in the LBGTQ+ communities. I want to stop this abuse from happening. I want today’s children to be taught compassion and kindness for all!

Unfortunately, Covid is still a problem for many in the disability community. We often have reduced lung capacity, asthma, and other health issues that are still making it more likely that we would get severe Covid and potentially die. Most of us are up-to-date on the Covid vaccines but some of us, such as myself, can’t swallow Paxlovid because the pills are too large and can’t be crushed. People are moving on from Covid and just don’t think about those of us are still going to great lengths to avoid getting it until there are better vaccines and treatments available for everyone to take and be okay. While my book is about my life pre-Covid, I still hope to use it to help people who are willing to truly listen and understand in order to be more aware of the vulnerable. I cling to hope that I will be able to live my life as I did prior to the pandemic someday soon.

Teaching children accurate information about disability is crucial in keeping society inclusive to all. Here are some examples of how to teach children about disability:

  • Instead of telling children not to stare, talk about how cool the wheelchair is or how incredible it is to walk with crutches. Point out how the person is also alike. For example, “It looks like her favorite color is green.”
  • When children ask “What’s wrong with him/her,” tell them that nothing is wrong with the person. The person just has a different body and/or brain and this is okay! We are all different and unique.
  • With Covid, please stand a certain distance from the person and ask him/her if you and your children may ask a few questions. I love answering questions from children! I also want adults to ask me questions instead of just assuming things about me that may or not be true.
  • Watch TV shows and movies about/featuring people with disabilities. Some examples of TV shows and movies are Speechless, Born This Way, Love on the Spectrum, As We See It, My Left Foot. Just search any streaming service and you’ll find all sorts of great shows and movies about and/or with people with disabilities. Some are more appropriate for younger audiences, of course, than others, but it’s important to let children learn about disability.
  • Read books about disabilities. There are tons of books for every age about different disabilities.

Love over hate is the goal we’re aiming for. Equality is also the aim. Nobody is better than anyone else; we all have human blood running through our veins!

I will keep you posted on when my new children’s book is available. Thank you so much to everyone who donated to my GoFundMe campaign last year!

Learning From Infants And Young Children

It’s Christmas again. We’re still struggling with Covid, and this year, also with RSV and the flu. But one thing still remains true: Simple is best!

As I opened a Christmas card with a picture of a 1-year-old infant exploring a Christmas box, it hit me how infants and young children really understand the true meaning of Christmas. Not just spiritually but physically. Because they haven’t yet been conditioned to expect the gift inside the shiny, crinkly paper, they will actually get more joy from just ripping the paper. They will examine every bit of the material.

We’re all excited for them to see what is in the package. Sadly, we rush them to get to the actual toy, but they are satisfied with the paper and the box.

So let them take their time with opening the box and exploring it and the paper. They are hearing all the different sounds of the paper and box. They are smelling all the different scents of the packaging. They are feeling the texture of the packaging. They are seeing the colors of the packaging—and even tasting them.

We’d be wise to observe this process and incorporate it into our own lives. Take time to truly explore and appreciate the small things. Love without conditions. Look out for each other.

Christmas is about love. We definitely need a whole lot more love in our world!

Happy Holidays!

5 Ways To Instill Kindness In Children

The night I wrote the following post was World Kindness Day. There’s so much hate going on in the world that we must commit to instilling kindness in our children for a better future. I am truly afraid of what the world will become if kindness and compassion don’t prevail.

1) Be kind yourself.

Children are constantly watching us from the moment they are born even when we don’t think they are. Let them see you open the door for people, smiling at all kinds of people, giving to people in need. Also, be kind to your children and apologize when you are unkind. We are all human beings that make mistakes.

2) Affirm acts of kindness.

When the baby hands you something, smile at him/her and thank the baby. Tell the baby how kind he/she is. Point out when your child does something kind without being asked such as, cleaning up, helping a sibling, or helping friends. Tell children how their kindness affects people even if it’s something small. For example, “Your sister looked so happy when you gave her your toy to play with.” The more you affirm kindness, the more children will continue to be kind.

3) Regularly participate in events that help people and animals.

Take your children shopping for other children. Donate to different causes. Go help at your local animal shelters. By participating in different events and fundraisers, you allow children to give back to others that need help. This also teaches gratitude for what they have.

4) Teach children about people who are different.

This is so critical for instilling kindness in children. Teach and expose them to all different races and ethnicities, LBGTQ+, people with disabilities. We must understand that all people are equal and they deserve kindness. The more children are taught to accept and embrace different people, the more likely that they will help these people and stick up for them instead of bullying and oppressing them.

5) Teach mindfulness to help them regulate their emotions.

Children, especially young children, have a hard time regulating their emotions, so it’s up to us to help them learn how to regulate them. We do this by naming the emotions that they are experiencing. For example, “You’re really angry. Let me help you. Here’s a pillow to kick.” Also, help the child to take some big breaths in and out. Doing a calming visual can also help calm the children down so you can teach them how to do better once they are calm and able to really hear you.

Children deserve kindness no matter what. This world is getting worse and worse because the media, especially social media, are fueling hate. I highly recommend limiting your time on social media. We can fight back by being kind and teaching kindness every day.