Tag: Cerebral palsy

Disability Pride, Inclusion, and Grief

Stephanie G. Cox, M.S.Ed
Celebrating July being Disability Pride Month.

In all of these pictures I have a smile on my face. It was a beautiful day on July first after many days of extreme heat which returned the next day. I hate July!  I actually always have because, due my severe cerebral palsy, I am extremely sensitive to loud noises. They make me jump whether I am aware that they are coming or not. Even if I know they are coming, I still get very anxious when trying to prepare for them.  I used to get in trouble for not being able to handle fireworks as a child. Thanks to the calming benefit of cannabis, I am now able to enjoy them more.

Nowadays there’s another reason why I hate July.  We lost the sweetest baby boy kitty during the first week of July. This year marks 7 years since he crossed the rainbow bridge. His birthday is on the 4th. This year we don’t have his “sister,” Patches, who always made it a wee bit easier. I woke up hysterically crying this morning because the three kitties who had given me unconditional love are in Heaven.  Sara, my childhood kitty, is the third kitty.

What does all of this have to do with July and Disability Pride Month?  A lot considering the way I, as a person with a disability, have been treated my whole life.  The Americans with Disability Act was finally passed in July of 1990. I was eight going on nine-years-old when it was passed. I had to go across town to a school that was wheelchair accessible and had a Special Ed program. Not every school was accessible or had a Special Education program to care for the disabled.  There was a school just blocks from my house but it wasn’t accessible to me.

I have had to overcome so many obstacles in my life due to society having stereotypes about the disabled. In fact, before the 1980s, people would complain about people with disabilities being in public spaces because “they were disturbing the other people.” For me it was people staring at me as well as the people who said that I wouldn’t amount to anything. I had to prove myself to them over and over due to their perception of me.

While the Americans with Disabilities Act is meant to protect people with disabilities from discrimination and make sure that public places are accessible for everyone, the reality is that it is only the minimum that is required to make society accessible to those who are disabled.

Enter Covid over four years ago. Did you know that six out of ten people with disabilities died of Covid in the height of the pandemic? Some people with disabilities were placed in Hospice care for Covid because the medical community was overwhelmed with the sheer volume of patients and the fact that the disabled are more work for them to give care, as well as the belief that their/our lives are not as “rich” as typical people. 

This is tragic. Now we have a society where people with disabilities are being left behind due to the misinformation that Covid is no longer a major threat. Society will not allow the disabled to be a part of it because we need masking and prevention measures.  Our population is still one of the hardest hit by Covid even though we are seen on television acting like we have moved on. Some have and that’s causing complications for those who are not able to risk getting Covid.

So yes, I have a smile on my face in these pictures, but my heart is broken over the loss of dear loved ones that accepted and loved me no matter what.  And the reality is that society truly has zero empathy and value for my life and others like me. If it did, I wouldn’t have to be isolated from it similar to those people preceding the Americans with Disabilities Act. 

Inclusivity means being willing to do whatever it takes to make sure everyone is able to participate. Even if it means a little sacrifice for this to happen.  In every public place, there are people who would like to be there but aren’t because it’s literally life and death.  Even with all the shots.  I can’t swallow Paxlovid and it’s not supposed to be crushed or broken.  I would have to go to the hospital and hopefully get the IV antiviral medication. I would probably be sick enough to require hospitalization because I always get bronchitis when I get the flu.

I end this with an update on my children’s book.  I was going to release it in March for Cerebral Palsy Awareness Month but our cat, Patches, got sick in February and I didn’t yet have a good way to try to protect myself and my husband from Covid. A woman in our Covid support group recommended that I try a “Readimask.” She once babysat for a child with cerebral palsy and understood about the associated spasms, movements, and different mouth movements when talking.  The Readimask is a N95-rated mask that utilizes an adhesive rather than straps to snugly fit to one’s face. It’s the only mask that’s stayed on my face. Despite being able to mask, I still have to be extremely careful with what we do. Masks work well. They work even better when others are also wearing them.

 Unfortunately, wearing a mask can get one bullied or even assaulted. People are stigmatizing masks which further stigmatizes the disabled, elderly, and other minorities.

With the fact that Patches crossed the rainbow bridge on March 28th after a short but horrific battle with what we now believe was a brain tumor that was affecting her jaw, combined with the stigma and unwillingness of people masking, and my emotional health being at an all-time low, I am hoping to try to release it in March of 2025. I am terrified that Donald Trump will be re-elected, thereby continuing the divisive hatred and intolerance he intensified throughout his first term as President. There is so much to my life and that, without the help and support from the community, people with disabilities such as myself, and other minorities are going to suffer even more.  

Also, since the book was written long before Covid, I needed to be true to myself and add a page about what my life is like now. I don’t get to do all the things I used to do. Everything takes even more planning.

This Disability Pride Month I wish for peace, kindness, empathy for others, and accessibility to society.

World CP Day

Stephanie G. Cox, M.S.Ed

Happy World CP Day! I’m discovering that aging with CP is hard. A lot more pain than I expected. However, I think back on my birth story and how I didn’t breathe for 40 minutes. The doctors almost let me go but my dad wouldn’t let them give up. Don’t go thinking my dad was a hero and I don’t know why parents would treat a child like me the way my parents treated me at times, but 42 years later, I’m still alive, married, and have my Master’s degree. I’m an author. I’m so much more than what people give/gave me credit for.

Cerebral Palsy is the most common lifelong disability in the world, and yet, we still don’t have federal funding for research on it. Many of my doctors have to be told more about it from me. And there’s limited resources available once one becomes an adult.

In the documentary, “Crip Camp,” it was revealed that back when Polio was still disabling children, “the Polios” were above “the CPs” because people who had Polio looked “more normal than the CPs.” It is crazy how much we still have to advocate and fight for ourselves. I truly feel like we are going backwards right now with the disability community because 6 out of 10 people with disabilities have died of Covid. It’s so scary to think people are okay with this and even want to not have to look at or deal with people like me because we’re so different and we need a lot more help to live.

I have an announcement regarding my new children’s book, My Name Is Steph. SEE ME! Please watch the following video that I made.

I hope I can get back out there and get this children’s book out to fight eugenics and other ableist things that even without Covid we still have to deal with daily.

July is Disability Pride Month

Stephanie G. Cox, M.S.Ed

How many of you are aware that July is Disability Pride Month? I only found out a couple of years ago. We hear all about the different minority groups months and diseases, yet, we don’t hear about the disabled unless we know someone who’s disabled or loves someone with a disability. Disabilities affect more people than we realize, and yet, we are still ignored for the most part.

I don’t think I have ever felt ashamed of my cerebral palsy. Yes, I have wished that I didn’t have it at times, but I don’t focus on it. Unfortunately, I have felt shame vibes at times from my family, not from my grandpa though. I do get self-conscious at times despite giving the air of confidence.

In fact, I will be honest about my intense anxiety about my book coming out because it has become a totally different world from when I first wrote it. I’m wanting to get out there with my book but I have to still worry about Covid in a society that is so quick to move on and accept that the vulnerable people may still be hospitalized or die from it. I’m afraid of all the eugenics going on in the world right now, especially the right wing cult…But the fact that even the people who used to take precautions against Covid have stopped is unknowingly spreading the eugenics. Why? Because people who are afraid of what the virus may do to our already unique bodies are even more left behind by society. Yet, I listen to the Calm app and I focus on what I have to do to protect myself from the hate as well as find people who are willing to work with me for in-person events. If people are not willing to mask and work with me, then they don’t deserve to meet me.

I believe that I have to keep educating people about disability. We need to put disability in the foreground because all the rights that are being seriously threatened by the right wing are just a preclude for more disability rights and help being taken away too. I challenge you to look into disability history. I challenge you to see how much adaptive equipment for the disabled costs. It’s not easy to get the help we need.

My cerebral palsy is a part of me. I’m proud of myself for fighting through all the battles I have fought and will continue to fight until I die. I’m disabled and I am proud to be who I am and see things that others are too busy to stop and see.

From Facebook

My Children’s Books and Teaching Children about Disabilities as well as Encouraging Children with Disabilities

Stephanie G. Cox, M.S.Ed

It’s been a while since I’ve written a blog post. This is due to the fact that I have been busy working with a wonderful illustrator that has finally completed the illustrations for my children’s book about my life with severe cerebral palsy. This was a very traumatic experience for me as “friends” wouldn’t finish the book’s illustrations in a timely manner. I was able to raise the money back with GoFundMe and the book is completed! George Franco is an amazing illustrator. I’m beyond grateful for his work and commitment to the project!

As I have written in previous posts, the book is based upon my life with severe cerebral palsy. We used actual photos of me both as a child and adult in order for the illustrations to show how I require very specific seating and care. It also shows how, with the help of my family and friends, I can overcome most obstacles to do what I want. It might look different but there’s usually a way around things.

I have yet to see any other picture books that accurately portray severe cerebral palsy. That’s why I wrote this book and was very specific about the illustrations showing how my wheelchair always has a lot of support to hold me in the proper sitting position as I can’t sit up on my own at all. I would fall right out of a standard wheelchair.

In the current environment of a group of people who are hateful toward anyone who doesn’t stand/measure up to their “agendas,” it is even more important to have a book that is all inclusive. It has every race, ethnicity, ability, and gender in it. I believe it is vital to fight for equality for human equality! Everyone is human and we are all equal!

I also want children like me to have a book that is inspiring to them. I want a child with any severe disability, especially those with cerebral palsy, to know that there’s hope. Even if the adults around them are telling them they will never achieve their goals and dreams, they can look at my book and just keep fighting for what they want to achieve!

Compassion is something that is in short supply in society today, and yet, there are many compassionate people out there who are advocating for people who are being oppressed and treated horribly by the new right-wing movement. It’s truly scary. The most abused children are often either disabled or in the LBGTQ+ communities. I want to stop this abuse from happening. I want today’s children to be taught compassion and kindness for all!

Unfortunately, Covid is still a problem for many in the disability community. We often have reduced lung capacity, asthma, and other health issues that are still making it more likely that we would get severe Covid and potentially die. Most of us are up-to-date on the Covid vaccines but some of us, such as myself, can’t swallow Paxlovid because the pills are too large and can’t be crushed. People are moving on from Covid and just don’t think about those of us are still going to great lengths to avoid getting it until there are better vaccines and treatments available for everyone to take and be okay. While my book is about my life pre-Covid, I still hope to use it to help people who are willing to truly listen and understand in order to be more aware of the vulnerable. I cling to hope that I will be able to live my life as I did prior to the pandemic someday soon.

Teaching children accurate information about disability is crucial in keeping society inclusive to all. Here are some examples of how to teach children about disability:

  • Instead of telling children not to stare, talk about how cool the wheelchair is or how incredible it is to walk with crutches. Point out how the person is also alike. For example, “It looks like her favorite color is green.”
  • When children ask “What’s wrong with him/her,” tell them that nothing is wrong with the person. The person just has a different body and/or brain and this is okay! We are all different and unique.
  • With Covid, please stand a certain distance from the person and ask him/her if you and your children may ask a few questions. I love answering questions from children! I also want adults to ask me questions instead of just assuming things about me that may or not be true.
  • Watch TV shows and movies about/featuring people with disabilities. Some examples of TV shows and movies are Speechless, Born This Way, Love on the Spectrum, As We See It, My Left Foot. Just search any streaming service and you’ll find all sorts of great shows and movies about and/or with people with disabilities. Some are more appropriate for younger audiences, of course, than others, but it’s important to let children learn about disability.
  • Read books about disabilities. There are tons of books for every age about different disabilities.

Love over hate is the goal we’re aiming for. Equality is also the aim. Nobody is better than anyone else; we all have human blood running through our veins!

I will keep you posted on when my new children’s book is available. Thank you so much to everyone who donated to my GoFundMe campaign last year!

Open Butterfly Wings

Stephanie G. Cox, M.S.Ed

March is Cerebral Palsy (CP) Awareness Month and the butterfly is the symbol for it. It makes sense because we are butterflies but our wings are usually clipped by society. Sure, we have limitations. For me, I have a lot of limitations because of my CP but I don’t like to focus on them. I like to live life. However, I have seen just how much humanity can clip wings with their ableist views on a virus that is killing people, especially us with cerebral palsy, who are high risk due to the muscles in our mouths, throats, and core that negatively affect swallowing and breathing. Even though I have become a “shut-in,” I truly try not to think about what I can’t do. It’s a bit harder, but this is not something that I choose to feel sorry for myself.

I do, however, try to relate to people why we are the way we are in this current situation. I require care 24/7. My husband does it all with zero help even if he is really sick or really hurting. He has no choice. Here’s a post I wrote about cerebral palsy last year.

It isn’t just now that society has clipped my wings. I had to prove myself from Day One. They didn’t think I would live (and really, I shouldn’t have with not breathing for 40 minutes), and if I did, I wouldn’t amount to much. I was in the NICU for almost two weeks.

Growing up, I had to prove myself to teachers and my peers. I was always the first person with severe cerebral palsy to do anything. I was finally allowed to be in regular classes when I was in 3rd grade. Even into college and grad school, I had to prove that with the correct accommodations, I could successfully complete the early childhood education program.

Even though I have spent most of my 40 years in school to have a career helping children and families, I still have not been able to get that career going like my peers have and I do have some shame and anger about this. But I’m refusing to give up.

Also, most people have no idea that the adaptive equipment I need isn’t cheap. It’s extremely expensive and I remember my parents fighting with their insurance companies that I had a medical need for a toilet chair or a bath chair or a wheelchair. Now I’m forced to pay for these things out of pocket and I had to have a Go Fund Me for my wheelchair in 2014 after my 19-year-old chair was so worn that the plastic was hurting me with no more padding.

There’s so much of my life that people don’t see and I want to be seen as a competent person who has unique needs. I still have to prove that I am a competent person because some people automatically assume that I am intellectually disabled. I love how children freely ask me questions and want to understand what is going on. Young children don’t judge me. They are curious. Older children can become bullies and I want to prevent that. Then there are a lot of “little me’s” that need another book that they can read and look at the pictures.

For me, growing up, the only book that I could relate to was called, Howie Helps Himself. The only problem was that they had him in a standard wheelchair, and at the end of the book, Howie pushes the wheels of his wheelchair to make it move. It kind of made me feel bad because I never was able to push myself.

My book shows my wheelchairs with my supports. It shows how I am able to do some of the same things that everyone else can do like love and feel and be a friend. It also shows real life things that I deal with every day such as knocking stuff over, being fed, falling over and needing help to get back up, people treating me as a “child.”

I truly believe that this book will help teachers and families teach children about disabilities and differences as well as similarities. It will also give hope to children with cerebral palsy as well as their parents and families.

Unfortunately, people like me are prey for people who think they can manipulate and use me until they reveal their true colors to me and I, and they, walk away. Thus, I have been ripped off twice now trying to get the book illustrated. I am an honest, caring, trusting person and I paid for each illustration as I approved them. All of the illustrators were people we felt close to and truly trusted. Lesson learned.

For Cerebral Palsy Awareness Month, I am asking for more people to help open butterfly wings by participating in a CP Awareness Month Facebook event and to please share as well as donate to my Go Fund Me page to keep raising the money we’ve lost in order to pay my new illustrator. I don’t know the illustrator and the contract is extremely specific. I have learned to guard my heart and my wings because I’m a free spirit. The illustrator will be paid after everything is completed and approved.

I want to open more wings despite the limitations.

Cerebral Palsy and Abuse

Stephanie G. Cox, M.S.Ed1 Comment

March was Cerebral Palsy (CP) Awareness Month and April was Child Abuse Awareness Month, and I have been wanting to write this post for a while now. This post will cover CP and abuse and mental health issues as May is Mental Health Awareness Month.

Cerebral palsy is a neurological disorder that affects the brain causing difficulty in movement. It can be mild, affect one side of the body, or severe. I have severe cerebral palsy and I can’t physically take care of myself at all. I didn’t breathe for 40 minutes after I was born and they almost gave up on me. I was in the NICU for a couple weeks and I wasn’t expected to live. But I did! I will be 40 in September!

But the lack of oxygen caused the brain damage that led to the CP. I can’t control my muscles and have spasms which are involuntary contractions of the muscles and involuntary movements. I am typical cognitively. I type with my nose and write books and these posts with my nose. My children’s book about my life with CP will hopefully be out at the end of the year. Getting the right illustrators has been hard but I finally found the perfect people to do it and they are doing a wonderful job with it!

Having a severe physical disability is hard but I refuse to let it ruin my life. I am a survivor and I hate pity! I crave acceptance and to be seen as a person! Sadly, many people are not able to see the real me. They see me as a child or subhuman instead of a competent person. I am so much more than my disability.

I prefer person-first language. I am a person with a disability, not a “disabled person.” I am a person with cerebral palsy! I refuse to be defined by my disability. Words like “handicapped,” “cripple,” “retard,” and “spaz” are very offensive to the disability community. We are people who deserve respect and rights and support. But again, despite making progress in this country, some people just refuse to accept and see us.

Children with disabilities are more likely to be abused and bullied. I was. Children that didn’t know me would make fun of me at school. I was also physically, mentally, emotionally, and verbally abused by my parents. As I have written in another blog post, I truly believe that both parents are/were narcissistic which is confusing because they did fight for me for the services that I needed and did care for and loved me, but there was also abuse at home. Some of the abuse that I experienced I recently found out through professional therapy that it was abuse and that I wasn’t protected like I should have been and have been put down even through adulthood. I am now protecting myself from those people and my husband does a wonderful job with helping me.

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What is sad is that in a Facebook group my abuse was questioned by some of the parents and these parents claimed that adults with CP are harder on parents. There’s no evidence that this is the case and all the people I know with CP have wonderful relationships with their parents because they weren’t abused by them. Never ever question the abuse of someone!!

Due to the lack of being able to do what typical children and adults are able to do combined with the abuse and trauma I have suffered, I battle anxiety, CPTSD, PTSD, and depression every day. Sometimes I have it pretty together and other times it is a struggle. The pandemic has heightened everything and I am struggling to get out of it again. I will though. Therapy is helping me.

Having CP is just something I live with like my mental health issues. I try to use my pain to help people. If I can stop one child from being hit or otherwise abused, I will keep advocating and educating people who are willing to learn. My pain and abuse doesn’t define me either but it is something that I live with.

I wish there was more acceptance for people with disabilities and mental health issues. I also wish that people understood that how we treat children will affect their mental health. If one isn’t a white, rich man, it’s still hard to get along in this society and this must change. There should be no stigma for the abused, people with disabilities, or people with mental health issues.

Let’s raise our children to be more aware and accepting. I hope my children’s book that will hopefully be out by the end of the year will help with creating a more zombie accepting world.

20 Years Ago Today…

Stephanie G. Cox, M.S.Ed

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June 10, 1999

This was me 20 years ago today. I graduated high school with my class ’99 with honors thanks to CHIP empowering me to stand up to everyone who thought I should stay in high school! I hated Individualized Education Plan (IEP) meetings because it was more like “Plan Steph’s Life” meetings, but Chip was my boyfriend then and came to these meetings with me giving me the courage to stand my ground. I don’t think anyone but Chip and I wanted me to graduate with my class. I would have been SO UNHAPPY not graduating especially when I was in the National Honor Society, and as you can see, graduated with honors!

I went on to Waubonsee Community College, and had a wonderful counselor who encouraged me to take Psychology which led me to be an early childhood professional with my Master’s Degree. No, things haven’t worked out exactly how I wanted but I am getting my children’s book illustrated by Candace Lyon, and I will get my 2nd edition (non-religious) of Gentle Firmness out on Amazon and keep advocating for children.  Eventually I will find my place.

I have always had to fight for everything, but I am blessed to have a wonderful man to fight with me to accomplish what I am supposed. I’m glad I don’t have a boring computer job that everyone but Chip tried to push me into!

May we teach children to never give up!

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Why I Share My Story Of Abuse

Stephanie G. Cox, M.S.Ed1 Comment

April is Child Abuse Awareness Month and anyone who knows me or has been following me or has my first edition of my book, Gentle Firmness, knows that child abuse is something I am extremely passionate about.

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Tattoo by Candace Lyon

I am a child abuse survivor.  I was physically, verbally, and emotionally abused by my dad and various other adults until I was 17 years old and finally told people that I was being abused.   All abusers make their victims feel shame and guilt.  One often thinks, “If only I did better,” or “It’s all my fault.”  I still struggle with this and have recently learned of additional abusive behavior that I’ve continued to endure as an adult that I was either unaware of and/or denied it was real.  Unfortunately, I continue to get confirmation that this abuse and manipulation is real and am putting a stop to it.

Mental illness runs in my family most likely due to the horrible cycle of abuse.  Genes may also play a part in the mental illness of my family.  My Adverse Childhood Experience (ACE) score is a 7, which is pretty high, and I struggle with anxiety, PTSD, and depression every day. But every day I work towards healing and helping people.

To not share my story and pain would be like not sharing something that, unfortunately, is a part of me.  It would be like denying that I have severe cerebral palsy.  While I don’t allow either of these things to define me, I have wounds and scars from my trauma and I believe in using my pain to help others—others who were abused, others who are trying to break the cycle with their own children, and others who need to know that we’re not alone in this. And if I can prevent one child from abuse and heartbreak from the people who are supposed to love them, then it’s all worth it.

Another reason I share my story is to show that there is hope even when it doesn’t always feel like it.  Some days are harder than others for us survivors, but we are survivors.  There is no shame in getting help professionally.  There’s no shame in creating healthy relationships to support you.  Abusers and their defenders will make you feel like a horrible person for opening up about your abuse but don’t let them win.  This is typical abuser behavior.  Unless the abuser gets help, nothing will ever change.

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I hope also try to help people understand that even “normative spankings” are abuse in that corporal punishment can make children at a higher risk of being physically abused.  When a parent spanks/hits a child and the child doesn’t obey, the parent may decide to spank/hit even harder.  This is a risk for physical abuse even if one doesn’t consider corporal punishment as abuse.  No child ever deserves to be hit.

And countless other studies show that corporal punishment is harmful to children and it often includes emotional and verbal abuse because the child is told how “bad” he/she is and how he/she “deserves the spanking.”

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My dad hit me because of my spasms, which are involuntary muscle movements due to my severe cerebral palsy.  He also hit me for other things.  He was verbally and emotionally abusive as well. He passed away in 2003.  

After extensively researching narcissism as well as conferring with a colleague that knows more about this mental illness than meI do, I now believe that both of my parents very likely had/have this disorder.  In addition to refusing to admit they were/are wrong, they exhibited/exhibit other key characteristics of narcissism such as a lack of empathy, “an inflated sense of their own importance, a deep need for excessive attention and admiration, troubled relationships” (Mayo Clinic, 2019).

I have been over-analyzing my own behaviors because I am absolutely terrified of getting this mental illness.  It’s important to realize that it’s human nature to occasionally be selfish and self-absorbed.  It is also human nature to want recognition for accomplishments or to not to want to always admit when we are wrong.  Sometimes, like children, we want our own way and lash out when we don’t get our way.  This is not narcissistic as long as we recognize these tendencies and can admit that we do some of them occasionally.  I know I do these things sometimes but I always admit it.  I will always apologize if I am in the wrong.

To have Narcissistic Personality Disorder (NPD), one must exhibit at least 5 or more of these characteristics to an abnormal level and not be able to admit that he/she is doing any of this.  People with NPD will deny that they have it and will make their victims believe that it’s the victims’ fault, not theirs.  And as with any kind of illness, there is a spectrum wherein each individual lies.  Some people have narcissistic tendencies and some have NPD.  Unfortunately, because people with narcissistic tendencies or NPD will absolutely not seek help for this mental illness, it’s very difficult to diagnose.  These people usually seek treatment for depression or anxiety but not narcissism (Bressert, 2019).  In addition to this, NPD and other personality disorders can have the same kind of characteristics.

It has also been suggested that the stigma of mental illness can be associated with narcissism (Arikan, 2005, https://pdfs.semanticscholar.org/aadd/5cd265bcaeeaff77d9ce4fe16abf4ad39dc8.pdf).

I forgive my parents and other abusers and their defenders, but I cannot remain silent.  This is now a part of my story and I will tell it in a respectful manner.  Because people with NPD or narcissistic tendencies are masters at manipulation, one must put up strong boundaries and stand firm.  Otherwise, through manipulation that isn’t always obvious, these people will break the boundaries.  Walking away from them is the best way to protect oneself and hopefully get them to get help.  But nothing is guaranteed with this mental illness.

One can and must forgive his/her abusers because the forgiveness is more about setting oneself free from harboring anger and resentment towards them.  However, this does not mean letting the abusers off the hook.  I can’t do this myself.  Forgiveness also does not mean that you have to reconcile with them.  It just means you are able to work through the pain and heal.

I also don’t believe that all abusers are narcissistic or have a mental illness.  The cycle is so hard to break especially when the community is actually encouraging the abuse and the silence of the children and adults.   I’m aware of many abusers and/or pro-spankers that have realized that they were wrong and have apologized for it.  They change the way they parent or interact with their grown children.  Change is possible!

I am learning how to not be in toxic relationships with people who continue to hurt me.  This is far from easy but having healthy relationships is crucial for healing and recovery.  Getting psychotherapy is a must.  And I heal from getting tattoos so I recently got the tattoo below.  It was very emotional for me but reminds me that I am a SURVIVOR!  I need this on the days that feel impossible to get through.

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Narcissistic survivor tattoo by Todd Bass

Gentle parenting is prevention for child abuse. If parents understand typical child development, then I believe that they are less likely to spank/hit or otherwise abuse their children.  Therefore, I will never stop sharing my story.  It is a part of my healing process.  I don’t do it out of spite.  I do it because I understand the pain and struggle after trauma and abuse.

May we value children and stop child abuse someday for good!

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References:

Arikan, K.  (2005).  A Stigmatizing Attitude Towards Psychiatric Illness is Associated with Narcissistic Personality Traits. Psychiatry Relat Sci Vol 42 No. 4 pp. 248–250

Black, R. (2019).  Personality Disorders: A Guide to the Ten Different Types.  Retrieved https://www.psycom.net/personality-disorders-10-different-types/

Bressert, S.  (2019). Narcissistic Personality Disorder.  Retrieved from https://psychcentral.com/disorders/narcissistic-personality-disorder/

Goodtherapy.  (2018).  Adverse Childhood Experience (ACE).  Retrieved from https://www.goodtherapy.org/blog/psychpedia/ace-questionnaire

Psychology Today.  (2019).  Narcissism.  Retrieved from https://www.psychologytoday.com/us/basics/narcissism

Mayo Clinic.  (2019).  Narcissistic Personality Disorder.  Retrieved from https://www.mayoclinic.org/diseases-conditions/narcissistic-personality-disorder/symptoms-causes/syc-20366662

 

Pain And Heartbreak: Finding Oneself

Stephanie G. Cox, M.S.Ed

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This is a rough week for my husband and I as we commemorate the birthday of our sweet kitty on the 4th of July.  He would have been 12. Then the 5th marks the first year since he went Home to Heaven.  We love our animals like family, so this is hitting us harder than we expected.

The Bible says to endure hardship as discipline.

“You have not yet resisted to the point of shedding blood in your striving against sin; and you have forgotten the exhortation which is addressed to you as sons,

“My son, do not regard lightly the discipline of the Lord,
Nor faint when you are reproved by Him;
For those whom the Lord loves He disciplines,
And He scourges every son whom He receives.”

 

It is for discipline that you endure; God deals with you as with sons; for what son is there whom his father does not discipline? But if you are without discipline, of which all have become partakers, then you are illegitimate children and not sons. Furthermore, we had earthly fathers to discipline us, and we respected them; shall we not much rather be subject to the Father of spirits, and live? For they disciplined us for a short time as seemed best to them, but He disciplines us for our good, so that we may share His holiness. All discipline for the moment seems not to be joyful, but sorrowful; yet to those who have been trained by it, afterwards it yields the peaceful fruit of righteousness” (Hebrews 12:4-11, NASB)

Unfortunately, many Christians take these verses to mean corporal punishment.  But if you read the Proverbs section of this blog, it has nothing to do with spanking/hitting children or hitting anyone.  It just means that growth and discipline is not always pleasant and easy.

And being a Christ-follower, I take to heart what Jesus said,

“Peace I leave with you; My peace I give to you; not as the world gives do I give to you. Do not let your heart be troubled, nor let it be fearful.”
(‭‭John‬ ‭14:27‬, NASB‬‬).

After much research, and guidance from the Holy Spirit, I truly believe He that one of the many ways He does this is through His gift of cannabis, and the appropriate use of alcohol (see 1 Timothy 5:23, Ecclesiastes 9:7, and Psalm 104:14-15 also references cannabis).  Of course, the Bible makes it clear not to get really drunk, but to relax and relieve some medical issues, alcohol use is perfectly fine and encouraged throughout the Bible.  In fact, one of Jesus’ first miracles was turning water into wine at a wedding in John 2:1-11.  Please see this post for a link to the use of cannabis during Biblical times.

Yes, we go through hardships throughout our lives and these hardships should make us grow—and grow closer to Him. I truly believe we should use discipline to help everyone grow, opposed to using punishment which keeps us stuck in the place we are in, no matter how old we are.

For example, children may appear to be growing despite being punished, but it’s really them learning to hide things from their parents in order to avoid getting punishment.  For adults, such a punitive attitude and belief system can trap them in harmful legalism and toxic relationships.  They can’t see Who Jesus really is—love.

My husband and I watched the movie Reincarnated about Snoop Dogg changing his life to one of peace and love. He went to Jamaica and he became a Rastafarian.  While we don’t agree with some of the Rastafarian doctrine, we love the way they love all and respect all people no matter what they believe.

They use cannabis as both medicine and to grow closer to God.  I have absolutely fallen in love with this song:

Yes, heartbreak will hopefully and eventually lead to growth. It is not God punishing us.  It’s life. We, as Christ-followers, must learn and understand this.  We must teach this to our children so they can truly grow in Christ.

One last thing about cannabis: I have severe cerebral palsy and use it medically for spasms, pain, anxiety, and PTSD.  As the result of being blessed by this sacred plant, I truly believe I am growing in Christ.  I’ve become more open to more encompassing love and grace. I am still very imperfect and make mistakes, but I am slowly getting better at loving others.

For years, I bought into the doctrine that marijuana is “evil.” It’s anything but.  In fact, it allowed me sit here with fireworks going off next door, and I was not jumping as much and not being anxious about the next boom. I am looking forward to going to the fireworks on the 4th. I will be using cannabis, thereby remaining more clearly aware of  and the Holy Spirit’s guidance and comfort to continue to deal with my heartbreak.  I am hopeful that cannabis will continue to ease my spasms and other ailments.  Yay for Cannabis!

As the line in the song says, “so raise a glass to the memories, set em free, and fill up all those ashtrays.”

In memory of Sara (January 27, 2007), Grandpa (May 2, 2016), my father-in-law (June 29, 2007), YP (July 5, 2017), Penelope (July 6, 2012), my mother-in-law (August 8, 2015), Sadie (October 6, 2011), and the rest of my loved ones in Heaven.

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Disappointment, Competition, And Community. The Value In Learning About All Three.

Stephanie G. Cox, M.S.Ed

Being an author, artist, athlete, or any other professional in which one is forced to compete is not an easy thing. As an author, I continue to have to deal with rejection and disappointment.  And sometimes, as a part of business, I must reject and disappoint others.

Writing books and finding an illustrator for my children’s book about my life with Cerebral Palsy has turned out to be much more difficult than I thought.  I hope to be able to contractually secure an illustrator for my children’s book this summer and still have it published in the fall, but nothing is guaranteed.  I may be disappointed again and/or have to disappoint someone else if the samples of illustrations don’t fit my vision of my children’s book.

Since this is a children’s book about me, it’s an absolute requirement that the cartoon character depicting me both as a child and adult is accurate.  I want young children to see what severe cerebral palsy looks like while showing them how much one can accomplish despite the disability.  I also want other children with cerebral palsy to be able to relate to the book.

Processed with MOLDIV

All of this got me thinking about disappointment, competition, and community.  I am 36 years old and I still don’t handle disappointment as well as I would like, yet we expect young children to deal with it better than we do. When they have a meltdown due to disappointment, we punish them instead of helping them learn to cope with disappointment.

And, at times, we even set the children up for disappointment by expecting them to do things that they are not ready to do like compete at a young age or go to a candy store without getting any candy when we know they can’t control their impulses.

Children are put in sports or other competitions and are expected to compete.  Even going to school has become a competition to see who can get the best grades and who can be the most popular.

While there’s a movement to give everyone trophies in competitions, I’m not sure if that’s the answer either.  I absolutely hate the way many conservatives talk about this; that giving everyone a trophy is turning them into “snowflakes (too sensitive).”  Yet, this culture and life requires hard work and earning things through hard work and talent.

Plus, children should be able to enjoy the journey towards their goals and accomplishments.  It is often the journey—whether or not it results in success or failure—that teaches us all important lessons.  We should not take this away from children by making everyone a “winner” or trying to shield them from all rejection and disappointment.

I love this meme from Calm:

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I believe that learning to work hard and how to cope with disappointment is very important for children. I also think for young children, there’s nothing wrong with getting a certificate of participation for participating in an event.  Teaching children that while everyone may not be able to be the best and win, it’s still important to be inclusive.

Then there’s community. Community is very important to teach children.  Having a communal attitude can go along way in helping this society to be more united. Children must be taught that, in basic human terms, everyone is equal no matter what!  Celebrating individual talents is fine but that doesn’t mean anyone’s “better” than the other when it comes to simply being a human being.

In many other countries, the culture is alll about community and putting others first. Children learn this from a young age and have been known to run together to reach a prize and then share it.  The children don’t believe that one can be happy if the whole group isn’t happy.  This is another great argument that children are not born sinful!  They act how they live. We are their teachers.

I recently attended an event with my husband and friend which was very community oriented. Everyone was happy, loving, and peaceful. It was very refreshing that there was no judgment or anything negative. We did play a game but it was all in fun and we were happy for the people who won.

I guess there’s a time for disappointment, competition, and community. However, we must teach children how to cope with disappointment and not push competition on them. Playing should be fun while teaching children about teamwork which is community. Disappointment is a part of life. We must teach them how to deal with their big feelings in a kind, compassionate way.

I must also point out that the Church is failing in community because the Church tends to pick and choose who they allow to be a part of the Church. The Church has been known to reject, be oppressive, and even abuse weaker groups of people of all ages.  Yet, Jesus calls us to love, help, and include everyone in the community.

But most of all, may we teach children community and inclusion. That looking out for everyone is what truly matters.  Working hard together and understanding that everyone has different talents is more important than anything else.

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